ADDRESSING THE NEEDS OF KEY SUBGROUPS OF CAREGIVERS OF PERSONS WITH DEMENTIA AFTER LOSS USING SELF-DETERMIN…
Federal financial assistance recorded from USAspending. This is not a procurement contract.
Assistance award details
- Assistance award identifier
- ASST_NON_R00AG073463_075
- FAIN
- R00AG073463
- Recipient
- ARIZONA STATE UNIVERSITY
- Awarding agency
- Department of Health and Human Services
- Funding agency
- Department of Health and Human Services
- Assistance listing (CFDA)
- 93.866
- Total obligated
- $812,974
- Period
- Sep 1, 2021 – Dec 31, 2025
- Fiscal year
- 2023
- Place of performance state
- AZ
- Source file
- FY2023_All_Assistance_Full_20261006.zip
Description
ADDRESSING THE NEEDS OF KEY SUBGROUPS OF CAREGIVERS OF PERSONS WITH DEMENTIA AFTER LOSS USING SELF-DETERMINATION THEORY: A MIXED METHODS APPROACH - PROJECT SUMMARY / ABSTRACT WITHIN 10 YEARS, MOST PERSONS LIVING WITH ALZHEIMERâS DISEASE AND RELATED DEMENTIAS (AD/ADRD; PLWD) WILL DIE, CREATING 13+ MILLION NEW BEREAVED AD/ADRD CAREGIVERS. 25% OF BEREAVED AD/ADRD CAREGIVERS HAVE CLINICALLY âCOMPLICATED GRIEFâ, WHICH IMPAIRS NEARLY ALL ASPECTS OF THEIR LIVES. AMONG BEREAVED AD/ADRD CAREGIVERS WHO ARE NOT CLINICALLY IMPAIRED, MILLIONS STILL SUFFER FROM HIGHER DEPRESSIVE SYMPTOMS AND LONELINESS AS WELL AS REDUCED WELL-BEING, PHYSICAL FUNCTION, SELF-CARE, AND PERSONAL GROWTH. RESEARCHERS MAY BE TEMPTED TO TREAT BEREAVED AD/ADRD CAREGIVERS AS A HOMOGENOUS GROUP, BUT BEREAVEMENT DIFFERS BETWEEN KEY KIN SUBGROUPS OF SPOUSES AND ADULT CHILDREN. UNFORTUNATELY, HOW BEREAVEMENT DIFFERS FOR EXTENDED FAMILY IS DIFFICULT TO DISCERN. THE LONG-TERM GOAL OF THIS RESEARCH IS TO DEVELOP INTERVENTIONS TO MEET THE NEEDS OF BEREAVED AD/ADRD CAREGIVERS. THE OBJECTIVE OF THIS PROPOSAL IS TO TEST A COMPREHENSIVE MODEL OF BEREAVED AD/ADRD CAREGIVER NEEDS AND IDENTIFY NEED SATISFYING EXPERIENCES WITHIN KEY KIN SUBGROUPS THAT ARE AMENABLE TO FUTURE INTERVENTION. THE CENTRAL HYPOTHESIS IS THAT BEREAVED AD/ADRD CAREGIVERS HAVE A COMMON SET OF NEEDS THAT INFLUENCE CLINICAL AND SUBCLINICAL OUTCOMES, BUT THAT SUBGROUPS MEET THOSE NEEDS IN DIFFERENT WAYS, BASED ON EVIDENCE FROM SELF-DETERMINATION THEORY AND 10 MONTHS OBSERVING BEREAVED AD/ADRD CAREGIVERS. AUTONOMY, COMPETENCE, AND RELATEDNESS ARE HYPOTHESIZED TO FORM A COMMON SET OF NEEDS ESSENTIAL TO CLINICAL AND SUBCLINICAL OUTCOMES FOR BEREAVED AD/ADRD CAREGIVERS (AIM 2; TESTED IN A SURVEY OF 400 BEREAVED AD/ADRD CAREGIVERS). KEY SUBGROUPS ARE HYPOTHESIZED TO MEET THESE NEEDS DIFFERENTLY (AIM 3; TESTED IN SEMI-STRUCTURED INTERVIEWS WITH 36-45 BEREAVED AD/ADRD CAREGIVERS). THROUGH A TAILORED TRAINING PLAN AND WORLD-RENOWNED- EXPERT MENTORSHIP I