CAREGIVING, COMPLEX FAMILY AND KINSHIP TIES, AND ALZHEIMER'S DISEASE AND RELATED DEMENTIAS (ADRD) - FAMILIE…
Federal financial assistance recorded from USAspending. This is not a procurement contract.
Assistance award details
- Assistance award identifier
- ASST_NON_R00AG073473_075
- FAIN
- R00AG073473
- Recipient
- REGENTS OF THE UNIVERSITY OF MICHIGAN
- Awarding agency
- Department of Health and Human Services
- Funding agency
- Department of Health and Human Services
- Assistance listing (CFDA)
- 93.866
- Total obligated
- $742,021
- Period
- Aug 15, 2022 – Apr 30, 2027
- Fiscal year
- 2024
- Place of performance state
- MI
- Source file
- FY2024_All_Assistance_Full_20261006.zip
Description
CAREGIVING, COMPLEX FAMILY AND KINSHIP TIES, AND ALZHEIMER'S DISEASE AND RELATED DEMENTIAS (ADRD) - FAMILIES AND UNPAID CAREGIVERS PROVIDE THE MAJORITY OF ASSISTANCE TO OLDER AMERICANS LIVING WITH LIMITATIONS IN THE U.S. THOSE LIVING WITH ALZHEIMERâS DISEASE AND RELATED DEMENTIAS (ADRD) EXPERIENCE PROGRESSIVE CARE NEEDS AND OFTEN RELY ON MULTIPLE FAMILY CAREGIVERS WHO SHARE RESPONSIBILITIES. MOREOVER, FAMILIES HAVE BECOME MORE COMPLEX IN RECENT YEARS â WITH MORE STEP TIES, COHABITATIONS, AND VOLUNTARY KIN VERSUS LEGAL OR BIOLOGICAL TIES âAND POPULATIONS WITH HIGHER RATES OF ADRD MAY BE AT HIGHER RISK FOR HAVING MORE COMPLEX FAMILY AND KINSHIP TIES. THERE ARE ALSO CONCERNS THAT NORMS ABOUT PROVIDING CARE MAY HAVE WEAKENED AS A RESULT. ALTHOUGH POPULATION-BASED AGING SURVEYS THAT ARE USED TO TRACK THE HEALTH AND WELL-BEING OF OLDER ADULTS HAVE BROADENED THEIR MEASURES OF KIN TO INCLUDE CURRENT STEPFAMILY TIES, NONE PROVIDE A COMPREHENSIVE ASSESSMENT OF FAMILY AND KIN TIES FROM BOTH CURRENT AND PAST RELATIONSHIPS OR VOLUNTARY FORMS OF KINSHIP. MOREOVER, OLDER ADULTS AND THEIR FAMILY MEMBERS PROVIDE DIFFERENT VANTAGE POINTS FOR STUDYING IMPLICATIONS OF FAMILY AND KINSHIP TIES FOR CAREGIVING AND THESE LINKAGES MAY FUNDAMENTALLY DIFFER FOR OLDER ADULTS LIVING WITH ADRD. AVAILABLE RESOURCES DO NOT ALLOW A FULL UNDERSTANDING OF THE CENTRAL QUESTION: UNDER WHAT CIRCUMSTANCES DO COMPLEX FAMILY AND KINSHIP TIES BECOME ACTIVATED AND HOW DOES THIS PROCESS DIFFER FOR INDIVIDUALS LIVING WITH ADRD? TO ADDRESS THIS QUESTION WILL REQUIRE TWO INNOVATIONS: 1) A SHIFT IN LANGUAGE TO RECOGNIZE FAMILY AND KINSHIP TIES INCLUDING SIMPLE, COMPLEX, BIOLOGICAL, LEGAL, AND VOLUNTARY KIN (HEREAFTER, âFAMILY AND KINSHIP TIESâ), AND 2) ASSESSMENT OF NORMS AND CARE BEHAVIOR THAT RECOGNIZE BOTH CAREGIVER AND CARE RECEIVER PERSPECTIVES. WITHOUT A FULLER UNDERSTANDING OF THESE TIES AND DUAL PERSPECTIVES, THERE REMAINS A CRITICAL KNOWLEDGE GAP ABOUT THE LANDSCAPE OF FAMILY AND KINSHIP TIES A