SOUTHEAST REGIONAL CANCER REGISTRY

THE GOAL OF THIS PROJECT IS TO DESIGN AND IMPLEMENT A REGIONAL CANCER REGISTRY COORDINATION CENTER CAPABLE OF ACCESSING DATA FROM LOCAL, INSTITUTIONAL, AND HOSPITAL REGISTRIES OF FOUR STATES: NORTH CAROLINA, SOUTH CAROLINA, TENNESSEE, AND GEORGIA, AS WELL AS THE SEER AND NCI DATABASES. THE SPECIFIC GOALS OF PHASE I ARE: (1) TO COMPILE A COMPREHENSIVE LISTING OF FEDERAL, STATE, LOCAL, AND PRIVATE CANCER REGISTRIES IN THE MENTIONED FOUR STATES; (2) TO PROVIDE DOCUMENTED PERMISSION TO ACCESS AT LEAST FOUR OF THESE SOURCES IN EACH STATE ALONG WITH ACCESS PROCEDURES AND RECORD FORMAT DATA; (3) TO PROVIDE EVIDENCE THAT A COMPUTERIZED RECORD FORMAT CONVERSION UTILITY SUCCESSFULLY RESTRUCTURES A GROUP OF APPROXIMATELY 50 SAMPLE COHORT RECORDS TO THE FORMAT OF ONE OF THE ACCESSIBLESOURCES; AND (4) TO PROVIDE A DETAILED EXPLANATION OF HOW LINKAGE OF THE RECORDS WOULD BE ACHIEVED AND THE NECESSARY DATA EXTRACTED.